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GENETIC AND RARE DISORDERS

Alliance of Genetic Support Groups
Directory of national genetic support groups, newsletter and information on services.
Jablonski's Multiple Congenital Anomaly/Mental Retardation (MCA/MR) Syndromes Database
700-entry database describes congenital abnormalities associated with mental retardation. Made available by the National Library of Medicine.
Massachusetts Genetics Programs
National Organization for Rare Disorders (NORD)
Federation of not-for-profit health organizations serving people with rare disorders and disabilities. Searchable database of rare disorders.
New England Regional Genetics Group
Educational materials and resources on genetics and genetic programs in New England.
Office of Rare Diseases - National Institutes of Health
Information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups.

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